Date: Saturday, May 4, 2013 - 9:00am
Location: Boone Greenway Burnley-Clawson Park
Mail In Your Form
Ten years ago former minister and director of Resort Area Ministry (RAM's Rack, etc.) of Boone was diagnosed with Huntington's Disease (HD). Huntington's Disease is an inherited disease that slowly diminishes the patient's ability to walk, think and reason. Tom's father and brother have both succumbed to this debilitating condition. In hopes of finding a cure, Tom wants people to know about Huntington's Disease and join him and his family Saturday, May 4, at the Boone Greenway Trail, as we increase awareness and raise money for research in hopes of finding an effective treatment and possible cure.
To date there are approximately 30,000 known HD cases in the United States with 250,000 Americans at risk of inheriting the disease from a parent.
Although medical research has provided HD patients with promising treatments related to their symptoms, there is yet a cure for Huntington's Disease., but with your support, together, we can make a difference.
HD is a hereditary, genetic disease that slowly causes deterioration of the brain and affects the individual's domains of cognitive skills (short-term memory, coping, organizing, and concentration), motor skills (loss of coordination, involuntary movement, fidgety behavior, and difficulties with speech, swallowing, balance, walking) and behavioral skills (irritability, depression, anxiety, aggressive outbursts, mood swings, and social withdrawal).
This disease can only be passed to another person genetically, and an individual has a 50/50 chance of inheriting the fatal disease if one of their parents is a carrier. Every person that carries the gene will eventually develop the disease.
huntington's disease society of americaThere are tests that can determine if an individual is a carrier; however, the test cannot determine when symptoms will begin. Even though there are tests available, many "at risk" individuals choose not to have the test.
It's important to remember that HD does not only affect the individual, but also their loved ones, emotionally, socially, and economically. The HDSA organization focuses on a specific symptom of Huntington's and then creates drugs and supplements that will altar and, hopefully, reduce that symptom. Tom has been an active participant in taking the latest experimental drugs throughout his diagnosis at Baptist Hospital in Winston-Salem, NC. There is a new research method that Tom is eagerly awaiting to try that has had a high percentage of success rates in reversing HD symptoms.
|F.A.R.M CAFE PASTA DINNER|
F.A.R.M. Cafe is sponsoring an early packet pickup and a pre-race pasta dinner Friday, May 3, from 6 to 8 p.m. at 167 West King Street. The meal includes pasta with or without meat, side salad, dessert, and a drink.
F.A.R.M. stands for, feed all regardless of means. This is a pay as you can donation event to contribute to the Tom Moore 5K Event as well as help F.A.R.M. Cafe in their mission.
The money raised by the pasta dinner will be split between F.A.R.M. Cafe and Huntington Disease Society of America
Entertainment will be provided by the Dash Board Hula Boys.
All proceeds from the event will be invested in the mission of HDSA: To promote and support research and medical efforts to eradicate Huntington's Disease, to assist people and families affected by Huntington's Disease to cope with the problems presented by the disease, and to educate the public and health professionals about Huntington's disease.
Participants will have the opportunity to enjoy refreshments following their run or walk.
Each registered participant is eligible for a door prize. Must be present to win!
Parking is available at the Burnley-Clawson Parking lot.
Southeast Regional Development
Manager: Edwina Bullard-Simms
PO Box 691452
Orlando, Florida 32869-1452
North Carolina Chapter
President: Lauren Holder
PO Box 240353
Charlotte, North Carolina 2822
- Boone Bike
- Jimmy John’s
- Unifarm Machinery Corporation
- United Church of Christ
- Ram’s Rack
- Tom, Jennifer, Casey and Tyler Moore
- Steve, Jan, Drew and Lee Stanley
- Evan Staley
- Josh and Katy Keller
- Friendship Honda
- Farmers Hardware
- The Rock
- Our Daily Bread
- Services Unlimited
- Five Guys
- The Tapp room
- Lowes Foods
- Los Arcoiris
- Scenic Motors
- FARM Café
- Stick Boy Bread
- Mi Carreta
- Outback Steakhouse
- Incredible Toy Company
- Ray’s Weather Center